epilepsy Posts

William Fiennes “The Snow Geese” and “The Music Room”

Best selling author William Fiennes The Snow Geese and The Music Room are two incredibly stunning pieces of literature. They are both meditative in quality.  The Snow Geese was written soon after he had been convalescing from a then unnamed disease but in his later book he reveals as Crohn’s Disease. While staying with his parents and taking long walks with his father, an avid birdwatcher, William Fiennes develops this urge to follow the snow geese on their migration to the Tundra. There is a slow, methodical and precise quality to the book which is extremely peaceful and restorative. It is as if the tiredness and exhaustion of this noisy daily existence slowly drains itself from one and is replaced by calmness, peace and quiet.

A similar reflective quality is found in The Music Room except that it is a very personal account of his family particularly of his brother Richard who has epilepsy. Richard is eleven years older to William.  Richard finally succumbs to it at the age of 41 when he is unable to breathe during an epileptic fit at night. William is overseas and receives a short message from his brother Martin to inform him of Richard’s death.  It is a deeply moving book about living with an epileptic patient. Anyone who has lived with an epileptic patient knows how to deal with the episodes of absence attacks and convulsions although Richard’s form of epilepsy was particularly violent and abusive. Despite the strong medication consisting mostly of sedatives Richard managed to be violent. In one instance he physically attacked a nurse at his epilepsy centre and a case had to be filed. When Richard and his mother went to the police station for the interview and was asked for details of the incident, Richard said truthfully he could not remember.  The Music Room is a moving testimony to having an epileptic brother while trying to live together as a family. Constantly the love and caring for the brother is what comes through in the book. Although they live in a medieval castle with plenty of rooms at times the family has to hide from Richard especially when is on a violent spree. Once William recalls he was locked up in a bathroom with his mother while Richard was on the other side of the door. Another time William spotted his father leaning against the wall of the house and when asked what he was doing, the older Fiennes said “seeking strength”.

After the success of these two magnificent books William Fiennes co-founded a charity with Katie Waldegrave — First Story: Changing lives through writing.

The charity runs writing workshops in schools across UK, hoping to encourage that revelatory process of ‘finding one’s own voice.’ Fiennes thinks that we all have our own unique voice, and he quotes Philip Pullman on the importance of discovering it: “Real writing can liberate and strengthen young people’s sense of themselves as almost nothing else can.”

So true!

Both the books have been published by Picador and continue to be available years after their publication.

7 May 2018 

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